Useful Links to Learn More About HIV/AIDS, Aging, and Aging with HIV

We are working towards creating a list of links that will have something for everyone. Whether you are an older adult living with or curious about HIV/AIDS, a care provider, a student or teacher, a concerned family member, friend, or potential volunteer, we hope that you will find some of these resources helpful. If you have recommendations about other organizations we should know about – or thoughts on other sorts of links we should include – please write us at info@grayingofaids.org.

Links organized by category:

Health Maintenance, Disease Management, & Quality of Life

A & U: America’s AIDS Magazine
A&U is a U.S.-based national nonprofit HIV/AIDS magazine dedicated to covering cultural, community-based and medical responses to the pandemic.

AIDS Clinical Trials Group (ACTG)
Supports the largest network of expert clinical and translational investigators and therapeutic clinical trials units in the world, including sites in resource-limited countries, often serving as the major resource for HIV/AIDS research, treatment, care, and training/education in their communities.
https://actgnetwork.org/community/links

AIDS Education and Training Center (AETC) Program
The training arm of the Ryan White HIV/AIDS Program. This national network of leading HIV experts provides locally based, tailored education, clinical consultation and technical assistance to healthcare professionals and healthcare organizations to integrate high quality, comprehensive care for those living with or affected by HIV.
http://aidsetc.org/

AIDS.gov
Works to expand visibility of timely and relevant federal HIV policies, programs, and resources to the American public and increase the use of new media tools by government, minority, and other community partners to extend the reach of HIV programs to communities at greatest risk.
https://aids.gov/

AIDSmeds
Providing people living with HIV the necessary information they need to make empowered treatment decisions. By offering complete but not complicated, up-to-date information, AIDSmeds.com seeks to help those that are both new and old to this challenge, and to remain a powerful resource for years to come.
www.aidsmeds.com

American Academy of HIV Medicine (AAHIVM)
Committed to supporting providers in HIV medicine and ensuring better care to those living with HIV/AIDS.  Website has a “Find a Provider” function, connecting patients with credentialed HIV specialists in their area.
www.aahivm.org

American Chronic Pain Association
Offers peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on this site have been designed to help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.
www.theacpa.org

The Body: The Complete HIV/AIDS Resource
An exceptional source of information about HIV/AIDS in general and living well with the virus in particular. Offers a variety of useful features including a comprehensive glossary, “Ask the Experts,” “Personal Stories,” and bulletin boards to help people connect and share information.
www.thebody.com/index/whatis/older.html

The Centers for Disease Control and Prevention (CDC)
A component of the US Department of Health and Human Services, the CDC coordinates research, promotes the sharing of knowledge, and tracks trends in the HIV/AIDS epidemic. Information and links, in English and Spanish.
www.cdc.gov/hiv

Center for Excellence in Transgender Health
Provides leadership, capacity building, professional training, policy advocacy, research development, and resources to increase access to culturally competent health care for transgender people in the United States.
http://transhealth.ucsf.edu

Choosing Longterm Care
This guide from the US Department of Health and Human Services Agency for Healthcare Research and Quality offers valuable tools to consider when choosing a long-term care facility for yourself or a loved one.
http://archive.ahrq.gov/consumer/qnt

Dementia Advocacy and Support Network
A group of autonomous and competent people diagnosed with dementia and their allies, committed to promoting respect and dignity for people with dementia, providing a forum for information exchange, encouraging support mechanisms, and advocating for services.
www.dasninternational.org

Encore Careers
For people interested in encore careers – jobs that combine personal meaning, continued income and social impact. A website published by Civic Ventures, Encore.org is not a job placement service, but provides free, comprehensive information that helps people transition to jobs in the nonprofit world and the public sector.
www.encore.org

Family Caregiver Alliance National Center on Caregiving
FCA has developed a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a “one-stop shopping center for caregivers,” FCA provides links to education and training, research, on-line services, and more.
http://www.caregiver.org/caregiver/jsp/home.jsp

Gay, Lesbian, Bisexual, and Transgender Health Access Project
Funded by the Massachusetts Department of Public Health, this collaborative, community-based project fosters comprehensive, culturally appropriate, quality health care services for GLBT people and their families. Includes links, materials, and a set of “community standards of practice and quality indicators” for care providers.
http://www.glbthealth.org

Gay & Lesbian Medical Association
Formerly known as the American Association of Physicians for Human Rights, GLMA was founded in 1981 with the mission of ensuring equality in health care for LGBT individuals and health care professionals. Site includes resources for patients, providers, and researchers, including a “Find a Provider” link.
http://www.glma.org

Gay Men’s Health Crisis (GMHC)
The world’s first and leading provider of HIV/AIDS prevention, care and advocacy. In addition to their comprehensive website, policy analyses, and newsletter, GMHC publishes informative reports including Growing Older With the Epidemic: Aging and HIV, released May 2010 and downloadable on their site.
http://www.gmhc.org

Geriatric Mental Health Foundation
Aims to raise awareness of psychiatric and mental health disorders affecting the elderly, eliminate the stigma of mental illness and treatment, promote healthy aging strategies, and increase access to quality mental health care for the elderly.
http://www.gmhfonline.org/gmhf

The Harm Reduction Coalition (HRC)
Provides information about the principles and practical realities of harm reduction, including syringe access programs, overdose prevention, drug treatment information, and tips for providers on effectively caring for active substance users.
www.harmreduction.org

HIV InSite
A resource created by the University of California at San Francisco that provides up-to-date information on HIV/AIDS prevention, treatment, and policy.
http://hivinsite.ucsf.edu

HIV-Plus
Magazine dedicated to helping its readers lead their fullest life possible by giving them tips, tools, and personal stories that motivate them to make the best of their friendships and relationships, work and leisure time, health care, and overall sense of well-being.
http://www.hivplusmag.com

Hospice Foundation of America (HFA)
Conducts programs of professional development, public education and information, research, publications and health policy issues, including programs to assist health care professionals and the general public coping personally or professionally with terminal illness, death, and the process of grief.
http://www.hospicefoundation.org

National Alliance for Caregiving
A coalition of organizations focusing on issues of family caregiving. Conducts research and policy analysis, develops national programs, increases public awareness, and works to strengthen state and local caregiving coalitions. Includes links to brochures, podcasts, and Family Caregiving 101.
www.caregiving.org

National Alliance of State and Territorial AIDS Directors (NASTAD)
Represents the nation’s chief state health agency staff with responsibility for administering HIV/AIDS healthcare, prevention, education, and supportive service programs funded by state and federal governments. Site includes information and updates on state AIDS Drug Assistant Programs (ADAPs).
http://www.nastad.org

National Alliance on Mental Illness (NAMI)
Works to improve the lives of those affected by mental illness through education programs and other resources for individuals, families, health care providers, and the general public; advocates on the state and national levels on behalf of people living with mental illness.
www.nami.org

National Clearinghouse for Long-Term Care
Developed by the U.S. Department of Health and Human Services to provide information and resources to help you and your family plan for future long-term care (LTC) needs. Includes helpful links, glossary, and tools to help you begin to explore your options and other, related concerns.
http://www.longtermcare.gov

National Council on Aging
Works with organizations across the US to help seniors find jobs and benefits, improve their health, live independently, and remain active in their communities. Coordinates strategic coalitions and multi-sector partnerships; mobilizes communities of organizations and leaders; and advocates to improve public policies.
http://www.ncoa.org

National Osteoporosis Foundation
The leading consumer and community-focused health organization dedicated to the prevention of osteoporosis and broken bones, the promotion of strong bones for life and the reduction of human suffering through programs of public and clinician awareness, education, advocacy and research.
http://www.nof.org

National Resource Center on LGBT Aging
Provides training, technical assistance and educational resources to aging providers, LGBT organizations and LGBT older adults.The country’s first and only technical assistance resource center aimed at improving the quality of services and supports offered to LGBT older adults, established in 2010 through a federal HHS grant.
http://www.lgbtagingcenter.org

National Sexuality Resource Center — Sex & Aging
NSRC creates content, leads trainings, and guides the development of a new sexuality movement founded on the concept of sexual literacy—the positive, integrated, and holistic view of sexuality from a social justice perspective. It strives to promote healthy sexuality, dispel myths and encourage sexual literacy for everyone.
http://nsrc.sfsu.edu/issues/sex-and-aging

New England Association on HIV over Fifty
NEAHOF uses research, education, communication, and personal empowerment to promote engagement and mutual respect among professionals in Aging and HIV policy, research, advocacy and care, and to champion the viewpoints and voices of those over 50 facing the health challenges of aging, including HIV/AIDS.
www.hivoverfifty.org

Our Bodies Ourselves
Our Bodies Ourselves, also known as the Boston Women’s Health Book Collective, is a nonprofit, public interest women’s health education, advocacy, and consulting organization. Site includes links to a wealth of information and resources on women’s health.
http://www.ourbodiesourselves.org

Poz
An award-winning print and online periodical that addresses the wide spectrum of needs of people living with and affected by HIV/AIDS, including daily news, treatment updates, personal profiles, investigative features, videos, blogs and an extensive online social network.
http://www.poz.com

Project Inform
Advocates for a compassionate response to the HIV epidemic by government, academia, industry and community, and connects people living with HIV with information necessary to make informed health decisions. In English and Spanish.
http://projectinform.org

Rural Center for AIDS/STD Prevention
Provides current prevention resources to professionals and the public and develops, evaluates, and shares materials and strategies specifically designed to overcome barriers to rural HIV/STD prevention.
www.indiana.edu/~aids

The San Francisco AIDS Foundation
Combines innovative programs for HIV prevention and care with bold policy initiatives focused on issues ranging from harm reduction to total health and wellness. Website offers a variety of helpful fact sheets, resources, and links, including a comprehensive glossary of HIV-relevant terminology.
http://www.sfaf.org

San Francisco Sex Information (SFSI)
Provides free, confidential, accurate, non-judgmental information about sex and reproductive health; trains people to become sex educators and operates a free information and referral switchboard.
http://test.sfsi.org

SeniorNet
The nation’s premier provider of computer education to those in need (seniors and underserved) through their Learning Centers and online communities.
http://www.seniornet.com

Services and Advocacy for Gay, Lesbian, Bisexual, and Transgender Elders (SAGE)
Addresses the gaps in sensitivities and services that often leave GLBT seniors under-served and can send them “back into the closet.” Website includes information on resources, policy and New York programs, with links to affiliates around the country.
www.sageusa.org

Sexual Health Network
Dedicated to providing easy access to sexuality information, education, mutual support, counseling, therapy, healthcare, products and other resources for people with disabilities, illness, or natural changes throughout the lifecycle and those who love them or care for them.
http://www.sexualhealth.com

Through the Looking Glass (TLG)
A disability community based nonprofit organization which emerged from the independent living movement, TLG is a nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue.
http://lookingglass.org/index.php

Transgender Legal Defense and Education Fund (TLDEF)
Fights for equality for transgender people through public education, test-case litigation, direct legal services, community organizing and public policy efforts.
http://www.transgenderlegal.org

US Department of Health & Human Services Administration on Aging (AoA)
Supports a comprehensive, coordinated and cost-effective system of home and community-based services that help elderly individuals maintain their health and independence. Includes links to Eldercare Locator Website, The BenefitsCheckUp Website, and a wide range of services funded under the Older Americans Act.
http://www.aoa.gov

US Department of Health and Human Services Health Resources and Services Administration (HRSA)
Channels critical HIV/AIDS medical care and social service funding into communities, and helps to train providers working in these communities, through Ryan White Program funding. This umbrella site can help connect you to care, training, and other relevant information and resources.
http://hrsa.gov

US Department of Justice Americans With Disabilities Act (ADA)
Know your rights and responsibilities: people living with HIV/AIDS are protected by the Americans With Disabilities Act. Site includes links to resources including a toll-free hotline that permits businesses, state and local governments, or others to call and ask questions about general or specific ADA requirements.
http://www.ada.gov

The Well Project
Develops resources to educate and support HIV-positive women, their caregivers, and their care providers. Informs research for new treatments, promotes better standards of care, increases awareness and education about women and HIV, and connects people in search of a trusted, supportive, and protected environment.
http://www.thewellproject.org/en_US

Women Organized to Respond to Life-Threatening Disease (WORLD)
Emphasizes peer-based advocacy and education. Programs include The Lotus Project, a national skills-building training for HIV-positive women interested in become peer advocates, and Positive Women’s Network, which aims to strengthen the impact that women living with HIV have on policy matters that impact their daily lives.
http://www.womenhiv.org

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Direct Services & Community Action

The Balm in Gilead
Works to improve the health status of people of the African Diaspora by supporting faith institutions in program design, implementation and evaluation, strengthening their capacity to deliver programs and services that help eliminate health disparities. A pioneer in mobilizing and educating faith communities in the fight against AIDS.
http://www.balmingilead.org

Broadway House for Continuing Care
New Jersey’s only special care facility for People Living with AIDS, and the community-based organizational partner of  The Graying of AIDS.
www.broadwayhouse.org

Callen-Lorde Community Health Center
New York City’s only primary health care center dedicated to meeting the health needs of the lesbian, gay, bisexual and transgender communities and people living with HIV/AIDS. Provides sensitive, quality health care and related services primarily to New York’s LGBT communities regardless of ability to pay.
http://www.callen-lorde.org

Chicago Recovery Alliance
Committed to directly serving, supporting, educating, and advocating for reducing drug-related harms. Includes links to harm reduction programs, tips on vein care and safer injection, and resources on overdose prevention, harm reduction practice, and treatment and other referrals. Materials in English, Spanish, Russian, & Croatian.
http://www.anypositivechange.org/menu.html

Family Caregiver Alliance National Center on Caregiving
Provides a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a “one-stop shopping center for caregivers,” FCA provides links to education and training, research, on-line services, and more.
http://www.caregiver.org/caregiver/jsp/home.jsp

Gay & Lesbian Medical Association
Formerly known as the American Association of Physicians for Human Rights, GLMA was founded in 1981 with the mission of ensuring equality in health care for LGBT individuals and health care professionals. Site includes resources for patients, providers, and researchers, including a “Find a Provider” link.
http://www.glma.org

Gay Men’s Health Crisis (GMHC)
The world’s first and leading provider of HIV/AIDS prevention, care and advocacy. In addition to their comprehensive website, policy analyses, and newsletter, GMHC publishes informative reports including Growing Older With the Epidemic: Aging and HIV, released May 2010 and downloadable on their site.
http://www.gmhc.org

Geriatric Mental Health Foundation
Aims to raise awareness of psychiatric and mental health disorders affecting the elderly, eliminate the stigma of mental illness and treatment, promote healthy aging strategies, and increase access to quality mental health care for the elderly.
http://www.gmhfonline.org/gmhf

The Harm Reduction Coalition (HRC)
Provides information about the principles and practical realities of harm reduction, including syringe access programs, overdose prevention, drug treatment information, and tips for providers on effectively caring for active substance users.
www.harmreduction.org

Housing Works
Committed to ending the twin crises of AIDS and homelessness, Housing Works provides lifesaving services such as housing, medical and mental health care, meals, job training, drug treatment, HIV prevention education, and social support to more than 20,000 homeless and low-income New Yorkers living with HIV and AIDS.
http://www.housingworks.org

Lambda Legal
A national organization committed to achieving full recognition of the civil rights of lesbians, gay men, bisexuals, transgender people and those with HIV through impact litigation, education and public policy work.
http://www.lambdalegal.org/help

Latino Commission on AIDS
Advocates for the health of Latinos, promoting HIV education, developing model prevention programs for high-risk communities, and building capacity in community organizations. Works to mobilize an effective community response to AIDS through its extensive network of member organizations and community leaders.
http://www.latinoaids.org

MCC Global HIV/AIDS Ministry
Partners with churches, presents workshops at religious and secular conferences, and provides spiritual formation curricula for adults and youth that can be used in churches, faith-based or secular settings to end the legacy of silence and inaction which has hurt millions of people who are impacted by HIV/AIDS.
http://www.mccgham.org

National Alliance for Caregiving
A coalition of organizations focusing on issues of family caregiving. Conducts research and policy analysis, develops national programs, increases public awareness, and works to strengthen state and local caregiving coalitions. Includes links to brochures, podcasts, and Family Caregiving 101.
www.caregiving.org

National Alliance on Mental Illness (NAMI)
Works to improve the lives of those affected by mental illness through education programs and other resources for individuals, families, health care providers, and the general public; advocates on the state and national levels on behalf of people living with mental illness.
www.nami.org

National Resource Center on LGBT Aging
Provides training, technical assistance and educational resources to aging providers, LGBT organizations and LGBT older adults.The country’s first and only technical assistance resource center aimed at improving the quality of services and supports offered to LGBT older adults, established in 2010 through a federal HHS grant.
http://www.lgbtagingcenter.org

National Senior Citizens Law Center
A non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, seeks to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
http://www.nsclc.org

National Sexuality Resource Center — Sex & Aging
NSRC creates content, leads trainings, and guides the development of a new sexuality movement founded on the concept of sexual literacy—the positive, integrated, and holistic view of sexuality from a social justice perspective. It strives to promote healthy sexuality, dispel myths and encourage sexual literacy for everyone.
http://nsrc.sfsu.edu/issues/sex-and-aging

New England Association on HIV over Fifty
NEAHOF uses research, education, communication, and personal empowerment to promote engagement and mutual respect among professionals in Aging and HIV policy, research, advocacy and care, and to champion the viewpoints and voices of those over 50 facing the health challenges of aging, including HIV/AIDS.
www.hivoverfifty.org

New York Association of HIV Over Fifty
Formed to address issues related to HIV/AIDS and older adults, NYAHOF works to ensure that the concerns of persons over the age of fifty and their support networks are addressed, and to generate educational, programmatic, and policy initiatives in the field of aging.
http://www.nyahof.org/mission.htm

Transgender Legal Defense and Education Fund (TLDEF)
Fights for equality for transgender people through public education, test-case litigation, direct legal services, community organizing and public policy efforts.
http://www.transgenderlegal.org

US Department of Health & Human Services Administration on Aging (AoA)
Supports a comprehensive, coordinated and cost-effective system of home and community-based services that help elderly individuals maintain their health and independence. Includes links to Eldercare Locator Website, The BenefitsCheckUp Website, and a wide range of services funded under the Older Americans Act.
http://www.aoa.gov/

US Department of Health and Human Services Health Resources and Services Administration (HRSA)
Channels critical HIV/AIDS medical care and social service funding into communities, and helps to train providers working in these communities, through Ryan White Program funding. This umbrella site can help connect you to care, training, and other relevant information and resources.
http://hrsa.gov

Women Organized to Respond to Life-Threatening Disease (WORLD)
Emphasizes peer-based advocacy and education. Programs include The Lotus Project, a national skills-building training for HIV-positive women interested in become peer advocates, and Positive Women’s Network, which aims to strengthen the impact that women living with HIV have on policy matters that impact their daily lives.
http://www.womenhiv.org

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Continuing Education & Training

AIDS Education and Training Center (AETC) Program
The AIDS Education and Training Center (AETC) Program is the training arm of the Ryan White HIV/AIDS Program. This national network of leading HIV experts provides locally based, tailored education, clinical consultation and technical assistance to healthcare professionals and healthcare organizations to integrate high quality, comprehensive care for those living with or affected by HIV.
http://aidsetc.org/

American Chronic Pain Association
Offers peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on this site have been designed to help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.
http://www.theacpa.org/default.aspx

AIDS Clinical Trials Group (ACTG)
Supports the largest network of expert clinical and translational investigators and therapeutic clinical trials units in the world, including sites in resource-limited countries, often serving as the major resource for HIV/AIDS research, treatment, care, and training/education in their communities.
https://actgnetwork.org/community/links

AIDS Community Research Initiative of America (ACRIA)
Home to The Center on HIV & Aging. Conducts and supports medical and social science research on HIV/AIDS, advocates on behalf of people living with HIV, and promotes HIV health literacy through treatment education programming and publications. Includes link to ROAH study.
www.acria.org

American Society on Aging
Aims to enhance the knowledge and skills of those professionals —  practitioners, educators, administrators, policymakers, business people, researchers, students — seeking to improve the quality of life of older adults and their families. Offers professional education, publications, and other resources like their Diversity Initiatives.
http://www.asaging.org

Association of Nurses in AIDS Care (ANAC)
Promotes professional development for nurses working with People Living with HIV. Includes public policy and advocacy information and links to professional development resources and ANAC chapters/activities.
www.nursesinaidscare.org

Black AIDS Institute
Works to stop the AIDS pandemic in Black communities by engaging and mobilizing Black institutions and individuals in efforts to confront HIV. Interprets policies, conducts trainings, offers technical assistance, disseminates information and provides advocacy mobilization from an unapologetically Black point of view.
http://www.blackaids.org

The Body: The Complete HIV/AIDS Resource
An exceptional source of information about HIV/AIDS in general and living well with the virus in particular. Offers a variety of useful features including a comprehensive glossary, “Ask the Experts,” “Personal Stories,” and bulletin boards to help people connect and share information.
www.thebody.com/index/whatis/older.html

The Centers for Disease Control and Prevention (CDC)
A component of the US Department of Health and Human Services, the CDC coordinates research, promotes the sharing of knowledge, and tracks trends in the HIV/AIDS epidemic. Information and links, in English and Spanish.
www.cdc.gov/hiv

Center for HIV Educational Studies and Training (CHEST)
Conducts research on social and psychological factors associated with HIV transmission and the well being of those living with HIV, with an emphasis on the promotion of sexual health. Carries out formative research and works to disseminate study findings to community organizations serving persons with HIV and at risk for HIV.
http://www.chestnyc.org

Family Caregiver Alliance National Center on Caregiving
Provides a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a “one-stop shopping center for caregivers,” FCA provides links to education and training, research, on-line services, and more.
http://www.caregiver.org/caregiver/jsp/home.jsp

Gay, Lesbian, Bisexual, and Transgender Health Access Project
Funded by the Massachusetts Department of Public Health, this collaborative, community-based project fosters comprehensive, culturally appropriate, quality health care services for GLBT people and their families. Includes links, materials, and a set of “community standards of practice and quality indicators” for care providers.
http://www.glbthealth.org

The Harm Reduction Coalition
Provides information about the principles and practical realities of harm reduction, including policies and procedures that address the adverse affects of drug use.
www.harmreduction.org

HIV InSite
A resource created by the University of California at San Francisco that provides up-to-date information on HIV/AIDS prevention, treatment, and policy.
http://hivinsite.ucsf.edu

HIV Wisdom For Older Women
Delivers prevention and outreach programs nationwide to diverse audiences, including health, aging, and social service providers; church congregations; students; senior groups; and fraternal, social, and corporate organizations to raise the public awareness that HIV infection can and does impact mid-life and older women.
http://www.hivwisdom.org/facts.html

Hospice Foundation of America (HFA)
Conducts programs of professional development, public education and information, research, publications and health policy issues, including programs to assist health care professionals and the general public coping personally or professionally with terminal illness, death, and the process of grief.
http://www.hospicefoundation.org/

MCC Global HIV/AIDS Ministry
Partners with churches, presents workshops at religious and secular conferences, and provides spiritual formation curricula for adults and youth that can be used in churches, faith-based or secular settings to end the legacy of silence and inaction which has hurt millions of people who are impacted by HIV/AIDS.
http://www.mccgham.org

National Alliance on Mental Illness (NAMI)
Works to improve the lives of those affected by mental illness through education programs and other resources for individuals, families, health care providers, and the general public; advocates on the state and national levels on behalf of people living with mental illness.
www.nami.org

National Coalition for LGBT Health
Committed to improving the health and well-being of LGBT individuals through federal advocacy focused on research, policy, education, and training. Priority issues include increasing professional and cultural competencies of providers and others engaged in health and social service delivery to the LGBT population.
http://lgbthealth.webolutionary.com

National HIV/AIDS Clinician’s Consultation Center (NCCC)
Provides call-in services including a “Warmline” that provides expert clinical advice on HIV/AIDS management for health care providers, from those with limited access to expert consultation to those with complex antiretroviral resistance dilemmas. Based at UCSF/San Francisco General Hospital.
http://www.nccc.ucsf.edu

National Osteoporosis Foundation
The leading consumer and community-focused health organization dedicated to the prevention of osteoporosis and broken bones, the promotion of strong bones for life and the reduction of human suffering through programs of public and clinician awareness, education, advocacy and research.
http://www.nof.org

National Resource Center on LGBT Aging
Provides training, technical assistance and educational resources to aging providers, LGBT organizations and LGBT older adults.The country’s first and only technical assistance resource center aimed at improving the quality of services and supports offered to LGBT older adults, established in 2010 through a federal HHS grant.
http://www.lgbtagingcenter.org

National Senior Citizens Law Center
A non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, seeks to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
http://www.nsclc.org

New England Association on HIV over Fifty
NEAHOF uses research, education, communication, and personal empowerment to promote engagement and mutual respect among professionals in Aging and HIV policy, research, advocacy and care, and to champion the viewpoints and voices of those over 50 facing the health challenges of aging, including HIV/AIDS.
www.hivoverfifty.org

New York Association of HIV Over Fifty
Formed to address issues related to HIV/AIDS and older adults, NYAHOF works to ensure that the concerns of persons over the age of fifty and their support networks are addressed, and to generate educational, programmatic, and policy initiatives in the field of aging.
http://www.nyahof.org/mission.htm

Paraprofessional Healthcare Institute (PHI)
Works to improve the lives of people who need home or residential care by improving the lives of the workers who provide that care so that both may live with dignity, respect and independence. Resources include educational and training materials, policy recommendations, and evaluation tools.
http://phinational.org

Rural Center for AIDS/STD Prevention
Provides current prevention resources to professionals and the public and develops, evaluates, and shares materials and strategies specifically designed to overcome barriers to rural HIV/STD prevention.
www.indiana.edu/~aids

San Francisco Sex Information (SFSI)
Provides free, confidential, accurate, non-judgmental information about sex and reproductive health; trains people to become sex educators and operates a free information and referral switchboard.
http://test.sfsi.org/

Services and Advocacy for Gay, Lesbian, Bisexual, and Transgender Elders (SAGE)
Addresses the gaps in sensitivities and services that often leave GLBT seniors under-served and can send them “back into the closet.” Website includes information on resources, policy and New York programs, with links to affiliates around the country.
www.sageusa.org

Sexuality Information and Education Center of the United States (SIECUS)
A recognized leader in the field of sexuality and sexuality education, SIECUS has published numerous books, journals, and resources for professionals, parents, and the public. Resources include SexEdLibrary, the most comprehensive online sex ed resource in the nation, and a bibliography on sex in middle and later life.
http://www.siecus.com/index.cfm

Universal Precautions for Prevention of Transmission of HIV and Other Bloodborne Infections
Standard practice in health care settings is to handle blood and certain other bodily fluids from all patients — regardless of stated HIV-status — as potentially infectious for HIV, hepatitis, and other infections. “Universal Precautions” are standard guidelines designed to keep both health care providers and patients safe.
http://www.cdc.gov/ncidod/dhqp/bp_universal_precautions.html

US Department of Health and Human Services Health Resources and Services Administration (HRSA)
Channels critical HIV/AIDS medical care and social service funding into communities, and helps to train providers working in these communities, through Ryan White Program funding. This umbrella site can help connect you to care, training, and other relevant information and resources.
http://hrsa.gov

US Department of Justice Americans With Disabilities Act (ADA)
Know your rights and responsibilities: people living with HIV/AIDS are protected by the Americans With Disabilities Act. Site includes links to resources including a toll-free hotline that permits businesses, state and local governments, or others to call and ask questions about general or specific ADA requirements.
http://www.ada.gov

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Advocacy, Policy, and Research

AARP
A nonprofit, nonpartisan membership organization that aims to enhance the quality of life for all people as they age by advocating for positive social change, conducting aging-related research, and connecting members with valuable information and services.
www.aarp.org

The ACLU HIV/AIDS Project
Uses impact litigation, public education and advocacy at the state and federal level to fight discrimination against people with HIV/AIDS.
http://www.aclu.org/hiv-aids

AIDS Action Council
Develops and disseminates policy positions that support the interests of people affected by HIV/AIDS, keeps the community updated on federal policies and programs, and works to educate and inform the nation’s leaders on AIDS-related issues.
http://www.aidsaction.org.au/aac

AIDS Clinical Trials Group (ACTG)
Supports the largest network of expert clinical and translational investigators and therapeutic clinical trials units in the world, including sites in resource-limited countries, often serving as the major resource for HIV/AIDS research, treatment, care, and training/education in their communities.
https://actgnetwork.org/community/links

AIDS Community Research Initiative of America (ACRIA)
Home to The Center on HIV & Aging. Conducts and supports medical and social science research on HIV/AIDS, advocates on behalf of people living with HIV, and promotes HIV health literacy through treatment education programming and publications. Includes link to ROAH study.
www.acria.org

AIDS Research Institute at University of California, San Francisco
Brings together hundreds of scientists and more than 50 programs from throughout the university and affiliated labs and institutions, and works in close collaboration with affected communities. Fosters innovative and integrated science to prevent, understand, treat, and someday cure HIV infection.
http://ari.ucsf.edu

amfAR, The Foundation for AIDS Research
Supports innovative research into improvement in HIV/AIDS prevention and treatment strategies and other programs ranging in scope from public policy to education (including medical education) to global research, education, and treatment initiatives.
http://www.amfar.org

Association of Nurses in AIDS Care (ANAC)
Promotes professional development for nurses working with People Living with HIV. Includes public policy and advocacy information and links to professional development resources and ANAC chapters/activities.
www.nursesinaidscare.org

Black AIDS Institute
Works to stop the AIDS pandemic in Black communities by engaging and mobilizing Black institutions and individuals in efforts to confront HIV. Interprets policies, conducts trainings, offers technical assistance, disseminates information and provides advocacy mobilization from an unapologetically Black point of view.
http://www.blackaids.org

Center for AIDS Prevention Studies (CAPS)
Conducts research to prevent new HIV infections, improve health outcomes among those infected, and reduce disparities. Website includes links to past and current research and findings, model projects and curricula, survey instruments, outreach and evaluation manuals, and technical assistance.
http://www.caps.ucsf.edu

Center for Excellence in Transgender Health
Provides leadership, capacity building, professional training, policy advocacy, research development, and resources to increase access to culturally competent health care for transgender people in the United States.
http://transhealth.ucsf.edu

Center for HIV Educational Studies and Training (CHEST)
Conducts research on social and psychological factors associated with HIV transmission and the well being of those living with HIV, with an emphasis on the promotion of sexual health. Carries out formative research and works to disseminate study findings to community organizations serving persons with HIV and at risk for HIV.
http://www.chestnyc.org

Family Caregiver Alliance National Center on Caregiving
Provides a wide array of services and publications based on caregiver needs and offers programs at local, state, and national levels. Often described as a “one-stop shopping center for caregivers,” FCA provides links to education and training, research, on-line services, and more.
http://www.caregiver.org/caregiver/jsp/home.jsp

Gay & Lesbian Medical Association
Formerly known as the American Association of Physicians for Human Rights, GLMA was founded in 1981 with the mission of ensuring equality in health care for LGBT individuals and health care professionals. Site includes resources for patients, providers, and researchers, including a “Find a Provider” link.
http://www.glma.org

Gay Men’s Health Crisis (GMHC)
The world’s first and leading provider of HIV/AIDS prevention, care and advocacy. In addition to their comprehensive website, policy analyses, and newsletter, GMHC publishes informative reports including Growing Older With the Epidemic: Aging and HIV, released May 2010 and downloadable on their site.
http://www.gmhc.org

Guttmacher Institute
Advances sexual and reproductive health in the US and worldwide through an interrelated program of social science research, policy analysis and public education designed to generate new ideas, encourage enlightened public debate and promote sound policy and program development.
http://www.guttmacher.org

The Harm Reduction Coalition (HRC)
Provides information about the principles and practical realities of harm reduction, including syringe access programs, overdose prevention, drug treatment information, and tips for providers on effectively caring for active substance users.
www.harmreduction.org

HIV InSite
A resource created by the University of California at San Francisco that provides up-to-date information on HIV/AIDS prevention, treatment, and policy.
http://hivinsite.ucsf.edu

Hospice Foundation of America (HFA)
Conducts programs of professional development, public education and information, research, publications and health policy issues, including programs to assist health care professionals and the general public coping personally or professionally with terminal illness, death, and the process of grief.
http://www.hospicefoundation.org

Kaiser Family Foundation
A non-profit, private foundation that focuses on the major health care issues facing the US and the role of the US in global health policy. The site’s HIV/AIDS pages provide a wealth of helpful resources, including information-packed fact sheets, policy reports, survey data, and a user-friendly “Global HIV/AIDS timeline.”
http://www.kff.org/hivaids

Lambda Legal
A national organization committed to achieving full recognition of the civil rights of lesbians, gay men, bisexuals, transgender people and those with HIV through impact litigation, education and public policy work.
http://www.lambdalegal.org/help

National Alliance for Caregiving
A coalition of organizations focusing on issues of family caregiving. Conducts research and policy analysis, develops national programs, increases public awareness, and works to strengthen state and local caregiving coalitions. Includes links to brochures, podcasts, and Family Caregiving 101.
www.caregiving.org

National Alliance on Mental Illness (NAMI)
Works to improve the lives of those affected by mental illness through education programs and other resources for individuals, families, health care providers, and the general public; advocates on the state and national levels on behalf of people living with mental illness.
www.nami.org

National Black Gay Men’s Advocacy Coalition
Committed to improving the health and well-being of Black Gay Men through advocacy that is focused on research, policy, education and training.
http://www.nbgmac.org

National Council on Aging
Works with organizations across the US to help seniors find jobs and benefits, improve their health, live independently, and remain active in their communities. Coordinates strategic coalitions and multi-sector partnerships; mobilizes communities of organizations and leaders; and advocates to improve public policies.
http://www.ncoa.org

National Coalition for LGBT Health
Committed to improving the health and well-being of LGBT individuals through federal advocacy focused on research, policy, education, and training. Priority issues include increasing professional and cultural competencies of providers and others engaged in health and social service delivery to the LGBT population.
http://lgbthealth.webolutionary.com

National Hispanic Council on Aging
Works on the local and national levels to improve the quality of life for the Hispanic/Latino elderly, their families, and their communities. Focuses on the following program priorities: health promotion and disease prevention, financial security and civic engagement, policy, leadership development, education and housing.
http://www.nhcoa.org

National Institute of Allergy and Infectious Diseases (NIAID)
Conducts and supports basic and applied research to better understand, treat, and prevent infectious, immunologic, and allergic diseases, resulting in new therapies, vaccines, diagnostic tests, and other technologies. Includes links to a number of long-term cohort studies and HIV/AIDS Clinical Trials Networks.
http://www.niaid.nih.gov/about/organization/daids/Pages/default.aspx

National Institutes of Health Office of AIDS Research (OAR)
Coordinates the scientific, budgetary, legislative, and policy elements of the NIH AIDS research program. Sets scientific priorities, enhances collaboration, and ensures that research dollars are invested in the highest priority areas of scientific opportunity that will lead to new tools in the global fight against AIDS.
http://www.oar.nih.gov

National Institutes on Aging (NIA)
Part of the National Institutes of Health, NIA’s web site includes information for and about older people with HIV/AIDS in both English and Spanish.
http://www.nia.nih.gov/health/publication/hiv-aids-and-older-people

National Minority AIDS Council
A coalition of 3,000 community-based and AIDS service organizations working in communities of color nationwide. Develops leadership in communities of color through a variety of public policy education programs, national conferences, treatment and research programs and trainings, electronic and printed resource materials, and its website.
http://nmac.org

National Osteoporosis Foundation
The leading consumer and community-focused health organization dedicated to the prevention of osteoporosis and broken bones, the promotion of strong bones for life and the reduction of human suffering through programs of public and clinician awareness, education, advocacy and research.
http://www.nof.org

National Senior Citizens Law Center
A non-profit organization whose principal mission is to protect the rights of low-income older adults. Through advocacy, litigation, and the education and counseling of local advocates, seeks to ensure the health and economic security of those with limited income and resources, and access to the courts for all.
http://www.nsclc.org

New England Association on HIV over Fifty
NEAHOF uses research, education, communication, and personal empowerment to promote engagement and mutual respect among professionals in Aging and HIV policy, research, advocacy and care, and to champion the viewpoints and voices of those over 50 facing the health challenges of aging, including HIV/AIDS.
www.hivoverfifty.org

New York Association of HIV Over Fifty
Formed to address issues related to HIV/AIDS and older adults, NYAHOF works to ensure that the concerns of persons over the age of fifty and their support networks are addressed, and to generate educational, programmatic, and policy initiatives in the field of aging.
http://www.nyahof.org/mission.htm

Older Women’s League (OWL)
A national grassroots membership organization that focuses solely on issues unique to women as they age, OWL strives to improve the status and quality of life for midlife and older women through research, education, and advocacy activities.
http://www.owl-national.org/Welcome.html

Paraprofessional Healthcare Institute (PHI)
Works to improve the lives of people who need home or residential care by improving the lives of the workers who provide that care so that both may live with dignity, respect and independence. Resources include educational and training materials, policy recommendations, and evaluation tools.
http://phinational.org

Project Inform
Advocates for a compassionate response to the HIV epidemic by government, academia, industry and community, and connects people living with HIV with information necessary to make informed health decisions. In English and Spanish.
http://projectinform.org

Services and Advocacy for Gay, Lesbian, Bisexual, and Transgender Elders (SAGE)
Addresses the gaps in sensitivities and services that often leave GLBT seniors under-served and can send them “back into the closet.” Website includes information on resources, policy and New York progams, with links to affiliates around the country.
www.sageusa.org

Sexuality Information and Education Center of the United States (SIECUS)
A recognized leader in the field of sexuality and sexuality education, SIECUS has published numerous books, journals, and resources for professionals, parents, and the public. Resources include SexEdLibrary, the most comprehensive online sex ed resource in the nation, and a bibliography on sex in middle and later life.
http://www.siecus.com/index.cfm

Substance Abuse and Mental Health Services Administration (SAMHSA)
Strives to reduce the impact of substance abuse and mental illness on America’s communities through grant and contract awards, data collection, and the provision of the most up-to-date information about behavioral health issues and prevention/treatment approaches to states, providers, communities and the general public.
http://www.samhsa.gov/index.aspx

Transgender Legal Defense and Education Fund (TLDEF)
Fights for equality for transgender people through public education, test-case litigation, direct legal services, community organizing and public policy efforts.
http://www.transgenderlegal.org

Veterans Aging Cohort Study (VACS)
A study of HIV-positive and a matched control group of HIV- negative veterans in care in the US built around the VA, the largest integrated health-care system and the largest single provider of HIV care in the nation. Examining the role of comorbid medical and mental health concerns in determining clinical outcomes in HIV infection.
http://vacohort.org/index.aspx

The Well Project
Develops resources to educate and support HIV-positive women, their caregivers, and their care providers. Informs research for new treatments, promotes better standards of care, increases awareness and education about women and HIV, and connects people in search of a trusted, supportive, and protected environment.
http://www.thewellproject.org/en_US

The White House Office of National AIDS Policy (ONAP)
The part of the White House Domestic Policy Council tasked with coordinating government efforts to reduce HIV infections in the US. Site includes links to the National HIV/AIDS Strategy and to ONAP’s blog on policy-related developments (including a recent meeting ONAP hosted on HIV/AIDS and Aging).
http://www.whitehouse.gov/administration/eop/onap

Women Organized to Respond to Life-Threatening Disease (WORLD)
Emphasizes peer-based advocacy and education. Programs include The Lotus Project, a national skills-building training for HIV-positive women interested in become peer advocates, and Positive Women’s Network, which aims to strengthen the impact that women living with HIV have on policy matters that impact their daily lives.
http://www.womenhiv.org

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Government Programs & Agencies

The Centers for Disease Control and Prevention (CDC)
A component of the US Department of Health and Human Services, the CDC coordinates research, promotes the sharing of knowledge, and tracks trends in the HIV/AIDS epidemic. Information and links, in English and Spanish.
www.cdc.gov/hiv

Choosing Longterm Care
This guide from the US Department of Health and Human Services Agency for Healthcare Research and Quality offers valuable tools to consider when choosing a long-term care facility for yourself or a loved one.
http://www.ahrq.gov/patients-consumers/index.html

Housing Opportunities for Persons With AIDS (HOPWA)
The only Federal program dedicated to addressing the housing needs of persons living with HIV/AIDS and their families. Provide short- and long-term rental assistance, operate community residences or make use of other supportive housing facilities to address needs of persons who are living with HIV/AIDS and related challenges.
http://www.hud.gov/offices/cpd/aidshousing/index.cfm#hopwaprogram

National Clearinghouse for Long-Term Care
Developed by the U.S. Department of Health and Human Services to provide information and resources to help you and your family plan for future long-term care (LTC) needs. Includes helpful links, glossary, and tools to help you begin to explore your options and other, related concerns.
http://www.longtermcare.gov

National Alliance of State and Territorial AIDS Directors (NASTAD)
Represents the nation’s chief state health agency staff with responsibility for administering HIV/AIDS healthcare, prevention, education, and supportive service programs funded by state and federal governments. Site includes information and updates on state AIDS Drug Assistant Programs (ADAPs).
http://www.nastad.org

National Institute of Allergy and Infectious Diseases (NIAID)
Conducts and supports basic and applied research to better understand, treat, and prevent infectious, immunologic, and allergic diseases, resulting in new therapies, vaccines, diagnostic tests, and other technologies. Includes links to a number of long-term cohort studies and HIV/AIDS Clinical Trials Networks.
http://www.niaid.nih.gov/about/organization/daids/Pages/default.aspx

National Institutes of Health Office of AIDS Research (OAR)
Coordinates the scientific, budgetary, legislative, and policy elements of the NIH AIDS research program. Sets scientific priorities, enhances collaboration, and ensures that research dollars are invested in the highest priority areas of scientific opportunity that will lead to new tools in the global fight against AIDS.
http://www.oar.nih.gov

National Institutes on Aging (NIA)
Part of the National Institutes of Health, NIA’s web site includes information for and about older people with HIV/AIDS in both English and Spanish.
http://www.nia.nih.gov/health/publication/hiv-aids-and-older-people

Substance Abuse and Mental Health Services Administration (SAMHSA)
Strives to reduce the impact of substance abuse and mental illness on America’s communities through grant and contract awards, data collection, and the provision of the most up-to-date information about behavioral health issues and prevention/treatment approaches to states, providers, communities and the general public.
http://www.samhsa.gov/index.aspx

Universal Precautions for Prevention of Transmission of HIV and Other Bloodborne Infections
Standard practice in health care settings is to handle blood and certain other bodily fluids from all patients — regardless of stated HIV-status — as potentially infectious for HIV, hepatitis, and other infections. “Universal Precautions” are standard guidelines designed to keep both health care providers and patients safe.
http://www.cdc.gov/ncidod/dhqp/bp_universal_precautions.html

US Department of Health & Human Services Administration on Aging (AoA)
Supports a comprehensive, coordinated and cost-effective system of home and community-based services that help elderly individuals maintain their health and independence. Includes links to Eldercare Locator Website, The BenefitsCheckUp Website, and a wide range of services funded under the Older Americans Act.
http://www.aoa.gov

US Department of Health & Human Serices Centers for Medicare & Medicaid Services (CMS)
Aims to ensure effective, up-to-date health care coverage, to promote quality care for beneficiaries, and to achieve a transformed and modernized health care system. Site includes links to a variety of tools designed to make Medicare & Medicaid Services easier to understand and access.
http://www.cms.gov

US Department of Health and Human Services Health Resources and Services Administration (HRSA)
Channels critical HIV/AIDS medical care and social service funding into communities, and helps to train providers working in these communities, through Ryan White Program funding. This umbrella site can help connect you to care, training, and other relevant information and resources.
http://hrsa.gov

US Department of Justice Americans With Disabilities Act (ADA)
Know your rights and responsibilities: people living with HIV/AIDS are protected by the Americans With Disabilities Act. Site includes links to resources including a toll-free hotline that permits businesses, state and local governments, or others to call and ask questions about general or specific ADA requirements.
http://www.ada.gov

Veterans Aging Cohort Study (VACS)
A study of HIV-positive and a matched control group of HIV- negative veterans in care in the US built around the VA, the largest integrated health-care system and the largest single provider of HIV care in the nation. Examining the role of comorbid medical and mental health concerns in determining clinical outcomes in HIV infection.
http://vacohort.org/index.aspx

The White House Office of National AIDS Policy (ONAP)
The part of the White House Domestic Policy Council tasked with coordinating government efforts to reduce HIV infections in the US. Site includes links to the National HIV/AIDS Strategy and to ONAP’s blog on policy-related developments (including a recent meeting ONAP hosted on HIV/AIDS and Aging).
http://www.whitehouse.gov/administration/eop/onap

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Historical Perspectives on HIV/AIDS

The ACT UP Oral History Project
A collection of interviews with surviving members of the AIDS Coalition to Unleash Power, New York, that aims to de-mystify the process of making social change, remind us that change can be made, and help us understand how to do it.
http://www.actuporalhistory.org/interviews/index.html

The HIV Story Project
A non-profit, multi-platform story telling/media endeavor and short film compilation about living with HIV/AIDS at the beginning of the 21st Century.
http://www.thehivstoryproject.org

Kaiser Family Foundation
A non-profit, private foundation that focuses on the major health care issues facing the US and the role of the US in global health policy. The site’s HIV/AIDS pages provide a wealth of helpful resources, including information-packed fact sheets, policy reports, survey data, and a user-friendly “Global HIV/AIDS timeline.”
http://www.kff.org/hivaids

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HIV/AIDS Around the World
While our project focuses on older adults in the US, the following are a handful of useful resources for those seeking more information about the global pandemic.

AIDS Clinical Trials Group (ACTG)
Supports the largest Network of expert clinical and translational investigators and therapeutic clinical trials units in the world, including sites in resource-limited countries. These investigators and units serve as the major resource for HIV/AIDS research, treatment, care, and training/education in their communities.
https://actgnetwork.org/community/links

Global Action on Aging (GAA)
Based in New York at the United Nations, GAA reports on older people’s needs and potential within the global economy. It advocates by, with and for older persons worldwide.
http://www.globalaging.org/index.htm

Global Network of People Living with HIV (GNP+)
The only international network representing all people living with HIV, GNP+ works with independent and autonomous regional and national networks of people living with the virus in all continents to implement an evidence-informed advocacy program focused on empowerment; human rights; positive health, dignity, and prevention; and sexual and reproductive health and rights of people living with HIV.
http://www.gnpplus.net/

HelpAge International
HelpAge helps older people claim their rights, challenge discrimination and overcome poverty so that they can lead dignified, secure, active and healthy lives. Their HIV/AIDS programs address the impact of the epidemic on older adults as caregivers of orphans and sick adult children and as people living with HIV/AIDS.
http://www.helpage.org/what-we-do/hiv-and-aids/

Open Society Foundation’s Public Health Program
Among the many programs funded by OSI, the Public Health Program works to strengthen the capacity of organizations and leaders who represent marginalized communities around the world to advocate for better health policies and practices. It also pushes for greater government accountability and transparency in health care. Topics receiving special attention include HIV/AIDS, Access to Essential Medicines, Harm Reduction, Palliative Care, and Sexual Health and Rights. (A generous Open Society Institute Documentary Photography Project Audience Engagement Grant provided seed money for this project.)
http://www.soros.org/initiatives/health

Research Network on HIV/AIDS and the Elderly
Part of the Michigan Center on the Demography of Aging, this international network of researchers with interest in the impact of the HIV/AIDS epidemic on older persons, with a focus on their role as AIDS caregivers and care providers for AIDS orphans.
http://agingaidsnet.psc.isr.umich.edu/

UNAIDS
The Joint United Nations Programme on HIV/AIDS, is an innovative partnership that leads and inspires the world in achieving universal access to HIV prevention, treatment, care and support. While their new website is under construction, many helpful resources are still accessible including their report on the global epidemic.
http://unaidstoday.org/

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